Comments on: Gluten-Free Diet Story by Ashley https://www.allergy-details.com/gluten-free-diet/gluten-free-diet-story-ashley/?utm_source=rss&utm_medium=rss&utm_campaign=gluten-free-diet-story-ashley Gluten Allergy / Gluten Free Diet / Yeast Allergy / Asthma / + other Allergies Thu, 08 Mar 2012 14:04:08 +0000 hourly 1 https://wordpress.org/?v=5.8.9 By: Allergy Guy https://www.allergy-details.com/gluten-free-diet/gluten-free-diet-story-ashley/comment-page-1/#comment-10795 Thu, 08 Mar 2012 14:04:08 +0000 #comment-10795 In reply to John Weathers.

Thanks for sharing your story John, I’m sure it will be very inspiring to others.

It sounds like you ran across a lot of incompetent doctors. The rotational diet you were on obviously was not robust and missed one of the top food sensitivities out there: gluten (surpassed possibly by milk).

]]> By: John Weathers https://www.allergy-details.com/gluten-free-diet/gluten-free-diet-story-ashley/comment-page-1/#comment-10793 Thu, 08 Mar 2012 02:39:27 +0000 #comment-10793 I wanted to add some of my experiences in hopes of helping anybody that might be suffering as I have for the past thirty years. I am currently a forty-eight year old male in great health. What has made my life so miserable for so long started when I was nineteen. I woke up one day and my lips were swollen 3-4 times their normal size. I went to the doctor and got the first of many epinepherine injections. From that point forward I have had urticaria and angiodema all over my body daily until very recently. I was chronically constipated. I had learned to live with it and cope but like so many others, I was extremely frustrated with the doctors and allergists I had seen over the years. I was actually told by one doctor that the hot itchy swollen welts all over my back was caused by sensitive skin! I was incenced! All they ever did is charge me a fortune and made a feeble attempt to treat the syptoms with anti-histamines and steroids which yielded very little relief. The allergists stuck me with a thousand needles as did the accupuncurist, and the chiropractor all to no avail. I have tried rotation diets, food combining, self-help books, vitamins, cleanses, colonics, everything I could think of but I still suffered daily. I could not count the number of days I have missed form work, social functions, etc. because of my mystery illness. I had been resigned to the diagnosis of Auto-immune disease for the last ten years or so getting by with loading up on anti-histimines when it flared bad once a week or so. Now for the great part of my story! Thirty years later I have been freed finally from what felt like a curse. It was gluten! The whole time it was gluten! The rotation diets did not eliminate all forms of gluten and I did drink beer regularly. I have been on a gluten-free diet, including beer, for about six weeks and I have no symptoms at all and I feel wonderfull! I am the happiest I have been about my health since I was young. The best part? My adult health-concious daughter helped me figure it out with the help of sites such as this. Thank you for bringing awareness to those needing information. I only hope that my story can help somebody before they have to suffer as long as I have.

John W.

]]> By: Allergy Guy https://www.allergy-details.com/gluten-free-diet/gluten-free-diet-story-ashley/comment-page-1/#comment-8578 Sat, 03 Sep 2011 19:18:39 +0000 #comment-8578 In reply to Tara.

Hi Tara,

Your story is unfortunately not all that rare. There are thousands of comments attached to various comments on this website, and quite a few of them are similar to your story in many ways.

Yes, it could be a gluten intolerance you are suffering from, and/or some other food intolerance, in other words if avoiding gluten doesn’t do the trick, keep looking! If removing gluten works, keep looking anyhow, you may find other foods that are problematic. Milk is a common problem for example.

Of course the problem is not that you are crazy, the problem is that no doctor knows everything that is known (and there is still much more to discover in the field of human health), yet many have too big an ego. My theory is that they can’t seem to admit, even to themselves, that they don’t know everything. So they invent a reason to suit them: that the patient is crazy!

It sounds like you’re on the right track for sure. I know how you feel. At this stage it takes a lot of effort to discover the source of the problem, and the effort is magnified by feeling tired from your allergies. Make the effort to keep looking, and get as much help as you can from anyone who is welling to help you.

Good luck!

]]> By: Tara https://www.allergy-details.com/gluten-free-diet/gluten-free-diet-story-ashley/comment-page-1/#comment-8577 Sat, 03 Sep 2011 17:12:58 +0000 #comment-8577 I have been curious lately about this gluten free thing. I have been tested for allergis in the past and have environmental allergies, which include an allergy to mold. I would say for the past 15 years of my life I have been suffering from being extremely tired all the time, mood swings (which also go in perfect line with my menstrual cycle) and not being able to focus. Sometimes I feel like I am in a fog. I have a day here and there where I feel pretty good, but most of the time I am sooooo blasted tired.

I have even felt depressed and been treated for depression. After all my children, postpartom was an issue. I thought the being tired and the depression were from my lack of happiness in my last relationship and where my life was headed. Now, I have everything I could ever want and I still feel so depressed sometimes. Ashley describes it perfect in her article…one minute I am fine and the next, something triggers me to be sad, or angry or irritated. The brain fog is irritating too.

I have looked into several causes of my symptoms. I had an irregular pap and thought maybe it was cancer. Sadly, by the time I had to go back to get the follow up, I had moved and my insurance would no longer cover it, or it would but I would have to travel 2.5 hours to get tested again. I have wondered if it is my thyroid and I have been tested numerous times for that. I had anemia after I was pregnant but have tested fine since. I have wondered if I am just plain crazy! The week before my cycle starts is the worst on all of these symptoms, it is like they become magnified…I hate it!

I have watch for things in articles on TV and in the news that could answer my questions to my nagging symptoms. I have looked into PMDD (Premenstrual Dysphoric Disorder), PID (Pelvic Inflamatory DIsiease), I have looked at Fibromyalgia and when I was in the hospital a year ago with Pneumonia they mentioned that they had tested me for RA cause of the sudden onset of my pneumonia and the levels were slightly elevated but not enough to cause the onset. The bottom line, I have to figure it out on my own because I do not have the insurance to see a doctor and inquire about my issues and the doctors I have seen seem to lack patience and compassion for my concerns. Nothing worse than feeling like a whiner and the doctors looking at me like I am not only a whiner but like I am crazy.

It seems I have also gotten new symptoms of whatever, I have had bouts of my palms itching, burning and swelling. Feels like they have been stung by a dozen bees. I get these litte bumps that give clear liquid when popped or scratched off. I also get this pain in my arms that is so bad I feel like I am having a heart attack, fortuantely my fiancee is an EMT and he has ruled that out in the bouts of pain. Seems I get this pain not long after the bouts of itchy palms or after I exert myself.

So, lately I have seen this gluten intolerance. For some reason, I would like to think that this makes sense to me or I think it may be a solution because of some of the symptoms associated with it. I have noticed that sometimes after I eat I get even more tired. I have never woken up on the floor two hours later, but I have been to the point where I just can’t stay awake any longer. I have been wanting to change my diet for a while now, I have put on way too much weight in the last year (which I seem to chalk that up to my Fiance being the best cook ever!)., the itchy palms, the tiredness, the depression like symptoms…I can’t help but feel like maybe it is an allergic reaction.

I just want to understand why I am tired and moody all the time. These are the most annoying and consistent parts of all the things that seem to come up as I get older. The fatigue has about got me to the point of giving up and crawling in a hole and just giving into the tiredness and sleeping forever.

Thanks for ‘listening’

Tara

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