Comments on: Delayed Anaphylaxis https://www.allergy-details.com/allergy-symptoms/delayed-anaphylaxis/?utm_source=rss&utm_medium=rss&utm_campaign=delayed-anaphylaxis Gluten Allergy / Gluten Free Diet / Yeast Allergy / Asthma / + other Allergies Thu, 15 Dec 2016 01:27:19 +0000 hourly 1 https://wordpress.org/?v=5.8.9 By: Allergy Guy https://www.allergy-details.com/allergy-symptoms/delayed-anaphylaxis/comment-page-4/#comment-149533 Thu, 15 Dec 2016 01:27:19 +0000 #comment-149533 In reply to Sara.

Thanks for sharing that, Sara, very interesting. Unfortunately some doctors tend to assume their relatively simplistic model of medicine (I’m sure the model is complex, but nothing compared to reality) explains everything. They confuse the map with the territory. A good doctor will make notes on their map whenever reality shows an error in their map. Anyhow, glad you were able to figure it out.

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By: Sara https://www.allergy-details.com/allergy-symptoms/delayed-anaphylaxis/comment-page-4/#comment-149415 Mon, 12 Dec 2016 04:35:47 +0000 #comment-149415 In reply to Bob Bransford.

Hey,

I am not sure if this will help. But when I started having anaphylaxis they did allergy testing. They found I was allergic to all legumes especially soy. However, I had eaten soy in between reactions with no problem. I had one anaphylaxis reaction in 2008, and then the didn’t come back until 2009 and I was in the hospital randomly. Maybe 9 times that year and for the next five years. Finally I figured it out on my own. (Since all my allergists said I wouldn’t ever figure it out since it seemed so random) but my reactions were in fact to soy. I could eat it once and feel fine, Then if I ate it again I would get a stomach ache, if I continued to eat it I would eventually have anaphylaxis. Soy was in everything!!!! So t was easy to get exposed and not realize. It was a build up that caused it. The allergists said that couldn’t happen, but that was my case. Just an idea. I hope you find it soon as that is just a nightmare to live with.

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By: Bob Bransford https://www.allergy-details.com/allergy-symptoms/delayed-anaphylaxis/comment-page-4/#comment-146533 Mon, 27 Jun 2016 15:01:01 +0000 #comment-146533 My daughter (17) just experienced her 4th severe anaphylactic reaction in the last 3 years and all 4 of them have been about an hour after she went to sleep. We’ve been to Mayo and countless Dr’s to try and figure out why this is happening only to have no answers. Obviously we go nowhere without an Epi-pen. It was determined she is allergic to tree nuts but hasn’t had any prior to any of the reactions. She ate tree nuts at Mayo to see if it would trigger a reaction and it did not. Any suggestions?? Please help.

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By: T.M. https://www.allergy-details.com/allergy-symptoms/delayed-anaphylaxis/comment-page-3/#comment-23513 Fri, 18 Apr 2014 21:27:54 +0000 #comment-23513 In reply to Karen.

Karen,
There’s a great group for people with Alpha-Gal. Tons of information there as well as a lot of support.

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By: Tina https://www.allergy-details.com/allergy-symptoms/delayed-anaphylaxis/comment-page-4/#comment-23512 Fri, 18 Apr 2014 21:24:03 +0000 #comment-23512 In reply to Stephanie.

Stephanie,
You are more than welcome to join us at Alpha-Gal on face book. We are a growing group of almost 500 people from all over the world with AG. We share all kinds of things from things you didn’t know, wanted to know and really need to know. We are a very friendly helpful group of people.
Thanks,
Tina.

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By: Carolyn Waltz https://www.allergy-details.com/allergy-symptoms/delayed-anaphylaxis/comment-page-4/#comment-23511 Fri, 18 Apr 2014 01:52:15 +0000 #comment-23511 They have also more recently noted that people with the B blood antigen are not protected (I have this allergy, and my blood type is B.)

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By: Stephanie https://www.allergy-details.com/allergy-symptoms/delayed-anaphylaxis/comment-page-4/#comment-23510 Thu, 17 Apr 2014 18:30:32 +0000 #comment-23510 I have the mammalian allergy and this is my third year. I am not allergic to dairy, thank God, it’s bad enough I can’t enjoy a steak or a BLT. I have my alpha gal tested every 6-12 months. It goes up and down depending if I get bit by a tick or not. My skin prick allergy test came out positive for beef, lamb and pork. My window of shock is 15 hours. My allergy was very hard to figure out until I found a Dr who was dealing with two other patients that have it. If you think you have the allergy, don’t eat meat from a mammal, do not eat out unless you know all the products they are serving have no beef, lamb or pork juice, gravies, additives, collegen or have been cooked in the same spot where those meats are cooked. Be safe, not sorry. Oh, even candy uses beef products. Read All Labels!

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By: kateyj https://www.allergy-details.com/allergy-symptoms/delayed-anaphylaxis/comment-page-3/#comment-23509 Wed, 16 Apr 2014 19:21:41 +0000 #comment-23509 Chik-fil-a has milk in their buns and in their chicken breading. If you have alpha-gal, you are also allergic to dairy although you may tolerate some forms of it some of the time, or all of the time. Many people with alpha-gal allergy become sensitive to dairy over time. Many people with this allergy also will have reactions some of the time but not all of the time, to the same foods. That makes it difficult to figure out and also makes it risky to eat foods that you have had reactions to – even if sometimes you can get away with it.

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By: Judy https://www.allergy-details.com/allergy-symptoms/delayed-anaphylaxis/comment-page-3/#comment-23507 Wed, 16 Apr 2014 02:27:11 +0000 #comment-23507 I wonder what they cook the Chik filet in? Lard? Animal fat? Any gelatin ? Just a thought.

Best of luck to you !!

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By: Allergy Guy https://www.allergy-details.com/allergy-symptoms/delayed-anaphylaxis/comment-page-3/#comment-23506 Tue, 15 Apr 2014 20:49:59 +0000 #comment-23506 In reply to Karen.

Sounds frustrating and confusing. I hope the grass-fed beef continues to work out. Keep us posted as you learn more. Good luck!

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