Thanks for sharing that, Sara, very interesting. Unfortunately some doctors tend to assume their relatively simplistic model of medicine (I’m sure the model is complex, but nothing compared to reality) explains everything. They confuse the map with the territory. A good doctor will make notes on their map whenever reality shows an error in their map. Anyhow, glad you were able to figure it out.
]]>Hey,
I am not sure if this will help. But when I started having anaphylaxis they did allergy testing. They found I was allergic to all legumes especially soy. However, I had eaten soy in between reactions with no problem. I had one anaphylaxis reaction in 2008, and then the didn’t come back until 2009 and I was in the hospital randomly. Maybe 9 times that year and for the next five years. Finally I figured it out on my own. (Since all my allergists said I wouldn’t ever figure it out since it seemed so random) but my reactions were in fact to soy. I could eat it once and feel fine, Then if I ate it again I would get a stomach ache, if I continued to eat it I would eventually have anaphylaxis. Soy was in everything!!!! So t was easy to get exposed and not realize. It was a build up that caused it. The allergists said that couldn’t happen, but that was my case. Just an idea. I hope you find it soon as that is just a nightmare to live with.
]]>Karen,
There’s a great group for people with Alpha-Gal. Tons of information there as well as a lot of support.
Stephanie,
You are more than welcome to join us at Alpha-Gal on face book. We are a growing group of almost 500 people from all over the world with AG. We share all kinds of things from things you didn’t know, wanted to know and really need to know. We are a very friendly helpful group of people.
Thanks,
Tina.
Best of luck to you !!
]]>Sounds frustrating and confusing. I hope the grass-fed beef continues to work out. Keep us posted as you learn more. Good luck!
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