Keep in mind that this is self-diagnosed, so it can’t be considered scientific. But that doesn’t matter to the individual experiencing the gluten allergy attack. If a gluten-free diet works to alleviate symptoms, then that’s what you’ve got to do.
hello, To start… I personally say, if you are having unexplained symptoms go gluten free and then go to your doctor and say … Look at this study I did on myself____________________.
I want to tell you, before I went Gluten Free, I was tested for Celiac and I was told in no uncertain terms I had no problems with gluten and I should not even consider giving it up. But…..
I would like to share my story…. My symptoms went on for over a year and no one could explain them. But, oh my, the finger pointing between doctors was amazing! The triggers didn’t make sense, but it was always be in the morning if I was going to have symptoms; however, the “safe”time got progressively later as time went on. (“safe” time: If I did nothing until about 10 am when this started Nov of 2010, then it became 1 pm about 6, then 3 pm about 2 months ago I was okay to do drive and go about my day). But we never knew what was going to trigger it, driving, looking as pictures, giving speeches, doing laundry, cleaning, etc….
But, the symptoms where always the same… first the pictures on the walls would start to bounce, my speech would be slurred (unknowingly), I would repeat myself (babbling and unknowingly), I couldn’t walk or crawl as I had no balance at the peak of the episode. There was one medication that worked, Meclizine. It is used for vertigo. It basically suppresses your entire nervous system. So all those symptoms as well as not doing anything but sitting or lying there helped things get better.
Also getting my neck adjusted by a chiropractor seemed to help at times.
The last 3 weeks before I went gluten free, my parents had to drive me around with a wheel chair in the back of the car because we never knew when a spell was going to hit. At that time – there was no “safe” time. I also have a walker at my apartment just in case I should need it. I haven’t seen it for 7 days! The first 3 days of gluten free I kept it around!
I have since found out (today) that the gluten intolerance is actually triggering anxiety.
So ——– Yes – go for it – don’t wait for you doctor. Do your own study at home while you are going to the doctors if nothing else. And keep a journal!
Although my symptoms are very different, Mindy’s symptoms ring true, they are in many ways exaggerated versions of what I can get when I eat gluten.
Note that not getting a celiac test is not the best advice for everyone. It is a good thing Mindy was strong enough to ignore her doctor’s unhelpful advice!
What symptoms do you get when you have a gluten allergy attack?